Monday, February 27, 2017


Those in the know understand the complexities of raising a child with special needs and that of being a full time carer. Parents who are further down the track (like me) also understand the importance of having an interest in something that doesn't have anything to do with disability. Whether we are able to separate ourselves and be able to focus on a particular interest/hobby is another story! :)

For me, photography has been such a gift. Each day I spend a small pocket of time capturing an image. The journey has been challenging, however, I am making slow and steady progress.... a bit like my parenting!

Do you have an interest that helps you cope with all that is going on in your life?

Monday, January 30, 2017

Reality 2017

What do you do?

When you realise that 2017 is the year that your special needs child is turning 18?

When it hits home that this should be his last year of schooling?

When it dawns on you that this is the year he qualifies for a driver's licence?

When your heart pangs over the fact that he will not be spreading his wings ~ leaving home ~ getting a girlfriend ~ going to University ~ becoming independent?

What would you do?

How am I feeling?

Sad that my son is missing out on so much.

Sad that my son has no idea on what he is missing out on.

Sad for myself because each huge milestone missed is painful.

Sad for my other child because ultimately he will have to take on the responsibility of his brother.

Sad because one day I won't be here to look after him.

Sad that I am going to be a carer for the rest of my life. #donotjudge

Sad that I am not going to have empty nest syndrome.

Sad that my neurotypical friends are able to do what I can't do.

How would you feel?

What am I doing?

Having a wee cry every now and then.

Staying off social media.

Hanging out with other special needs parents, as they are the only ones who really understand.

Accepting that it is okay to have these sad feelings.

Understanding that grief has to be addressed and not buried away.

Exercising to keep the body strong.

Taking up Yoga to help find peace in the moment.

Drinking the occasional glass of wine.

Thinking up travel treats to get myself through this huge milestone.

Playing with my camera because I love it and it's a good switch off from reality!

What are you doing?